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What Is Autism To Me?

 

Google definition of autism that reads “a mental condition, present from early childhood, characterized by difficulty in communicating and forming relationships with other people and in using language and abstract concepts.”

The Google definition of autism is as follows (paraphrased): “A mental condition characterized by difficulty in communicating, and forming relationships, and in using abstract language and concepts.” This is true, but it’s very basic. For me, autism goes much deeper because it’s a large part of my identity that affects me daily.

Autism has many characteristics that are left out in this definition such as: repetition of behaviors and echolalia (repetition of another person’s words) and sensitivity to stimuli. Autism manifests differently for different people and means different things to different people.

The ways it affects me* vary day-to-day, depending on if I’ve had my medicine* or how my mood is. Things that don’t change, though, include the following: stimming, sensitivity to lights and sounds, having an adverse response to physical affection, social awkwardness, and difficulty with abstract concepts.Some of them are worsened on bad days, but they are always present for me, personally.  The main thing that affects me is my poor diet.

If I’ve had my medicine and have had a good day, I stim and am usually nonverbal. I’ll also definitely be talking about my special interests and spouting random facts about them. I find that I have a hard time remaining seated, and I can be very clumsy due to my excited nature when I’m happy. One major thing for me that can affect the type of mood I’m in is if my routine is disrupted. Having both ASD and OCD, routine is an important part of my life, regardless of if it’s personal or for school.

For bad days, I tend to have meltdown(s) or shutdown(s), which I’ll write an article about next to explain the difference. My sensitivity is often magnified, so most of the time I end up wearing a hoodie and sunglasses indoors, along with headphones, to calm it down. The headphones help cancel out noises. During these days, I’m semi-verbal. This means that I don’t speak much and often prefer avoiding it altogether. Being touched without being asked on these days can push me into a sensory overload and can cause a tantrum. These tantrums can include self-injurious behavior such as hitting, pinching, and/or hair pulling. I find myself having an odd attachment to my stim objects, needing specific ones for different situations. Outside stimuli affects which one I need, though, I usually go for a puff-ball I have. 

Those are examples of how I experience autism, but what it means to me is that I just think differently. I simply function in a different way than other people and have different needs. I don’t always understand or perceive things the way non-autistics (allistics) do.

Someone once asked me,  “If you could change anything about your autism, would you, and what would it be?” My answer to that is nothing. If I absolutely had to choose something, I would like to be better at making friends, but even so, I can work on that. I understand that I am far from what is considered neurotypical and that I struggle because of that, but it will only help me grow as a human being, and it will also help me be more compassionate towards other human beings. I accept my autism, and I accept myself how I am.

*This is only how it affects me. Like I mentioned, autism affects and manifests differently for different persons.

*There are no medicines specifically for autism as of now, but I take adderall which helps with my focus and helps me be calmer. Autism is not something that can or should be “cured,” and wanting it to be is an ableist concept that is harmful to autistic people.

 

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